Author Topic: Tired, have no spark to life, most Ugliest face after dramtic change  (Read 711 times)

kavan

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Re: Tired, have no spark to life, most Ugliest face after dramtic change
« Reply #15 on: May 13, 2025, 06:40:04 PM »
You are right. Went to several ENT's , just two weeks ago , they see you like 5 minutes and say all is fine (most of them when I say the word "oral fistula" don't wanna hear and sends me back to oral surgeons. Anyways the last one I forces him again to do endoscopic through nose - and he said all was ok . They always say it . But i'm sure the problem is more local .

He said unwillignly if I want he'll refer me to a CT again.. .since I've done at least 4 CT's this past 2 years , (and many more xrays over the years) I've said no. But I might do another CT , I have ANOTHER ENT in June,  I'll ask him to really try to help.   When they do Valsalva test  , (tell me to close nose and blow) there is no air coming out.  But again , I'm sure there is something small. It was missed many times. Even after surgery , it was opened again , they told me it was healed , when it wasn't .

When you say : "People can have sinus pain even when no hole openings are there like in a bad cold." , I guess you mean Sinusitis.. I guess I kinda have that, but not exactly , I don't imagine sinusitis hurts that much , (I'm on COUPLE kinds of opiates and it doesn't help) and it's more "pressure pain" . This is different pain and like all the time, It's not a week a year and passes... You reminded me my ENY doctor . I'll try to persist there. Thanks .  I used CHATgpt to find article of how a boneless area in mouth can cause pain even with no infection , I might show it to docs.

Ask them if they can drain what ever is in the sinuses (that isn't air) and plug up the hole. ENTs are supposed to do that type of thing. Look at a scan to see if the sinuses are full of something that's not air, drain them and plug the hole with some kind of collagen plug.
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kavan

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Re: Tired, have no spark to life, most Ugliest face after dramtic change
« Reply #16 on: May 14, 2025, 02:13:28 PM »
You are right. Went to several ENT's , just two weeks ago , they see you like 5 minutes and say all is fine (most of them when I say the word "oral fistula" don't wanna hear and sends me back to oral surgeons. Anyways the last one I forces him again to do endoscopic through nose - and he said all was ok . They always say it . But i'm sure the problem is more local .

He said unwillignly if I want he'll refer me to a CT again.. .since I've done at least 4 CT's this past 2 years , (and many more xrays over the years) I've said no. But I might do another CT , I have ANOTHER ENT in June,  I'll ask him to really try to help.   When they do Valsalva test  , (tell me to close nose and blow) there is no air coming out.  But again , I'm sure there is something small. It was missed many times. Even after surgery , it was opened again , they told me it was healed , when it wasn't .

When you say : "People can have sinus pain even when no hole openings are there like in a bad cold." , I guess you mean Sinusitis.. I guess I kinda have that, but not exactly , I don't imagine sinusitis hurts that much , (I'm on COUPLE kinds of opiates and it doesn't help) and it's more "pressure pain" . This is different pain and like all the time, It's not a week a year and passes... You reminded me my ENY doctor . I'll try to persist there. Thanks .  I used CHATgpt to find article of how a boneless area in mouth can cause pain even with no infection , I might show it to docs.

OOPS. I forgot to mention one thing here. Now that you know how the ENTs responded to the words; 'oral fistula' (to channel you back to an oral surgeon) don't use that term anymore. Instead, use the term: 'Perforation to the maxillary sinus'. Mention of the maxillary sinus positions them to recognize sinuses are indeed in their field.
Please. No PMs for private advice. Board issues only.