jawsurgeryforums.com
General Category => Emotional Support => Topic started by: Rico on February 07, 2016, 03:54:54 PM
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First symptoms started one month ago
I spent all my money for my surgery.
The TMJD I got from deviated jaw...
the deviated jaw is probably due to masseter muscle problem, but this is probably due to overcorrection
My surgeon tells me im hist first patient with such problem
I told him , that perhaps I'm the first one with specific asymmetry, and as far he was lucky about giving all people perfect symmetry in midface
He dropped my idea. I asked him to push back my zygoma bone little back to get what I had originally before fracture.
Now my cheek has more prominence, than originally
He gave me almost perfect symmetry to my midface, while my jaw is assymetric - i think there is a problem
He told me to take pain killers
But it's signal my TM joints are being damaged. The more i wait the worse irreversible damage.
tomorrow I'm going to to Hospital , but they are gonna kick me out , because they told me to not undergo such surgery.
However they were worried only about my eye. I do not have any eye problem. Completely unexpected problem
But for 99% they won't help me in hospital. I won't get help from NHS
an i do not have money for private clinic :/
I'm f**ked and terribly depressed
I chose wrong surgeon
The problem is it' getting worse, not better , so waiting will not change
I hope since it's 10 weeks after surgery they still can rebreake my bone.... to not perform full osteotomy (more invasive)
but i have bad feelings...
I'm terribly f**ked
at this point I regret i chose my surgeon, especially when he said he did not touch my jaw, only zygomatic bone
of course he is right, but betwenn zygomatic bone and jaw there is masseter muscle.. so changing position of zygoma, automatically muscle change its position
Perhaps my surgeon crossed some critical points where it does not work
"I did not touch your jaw"
before surgery i had good occlusion
now the jaw is deviated and he tells me its not due to surgery and im his first patient with something like that.. i do not believe... or he has very few patients
i'm so worried that i will never restore my joints when i will be in that state long
i can't eat what i want .. i only drink an eat very soft food
and it's not helpful
i can;t even talk for a longer time
pain from the ears and joints
what did i do...
i need help as fast as possible, but it will be almost impossible to get such help
i end up very badly
I have hope that it's gonna resolve itself, some therapy or something
but i think the main problem is just overcorrection, and physiotherapy wont change anything.. I'm gonn ask some surgeons
but you have to know ...how it's in Poland. If you go to hospital and tell him you have complications after surgery abroad, and now you can't get help anymore there, they don't care....or will tell you "ok ... we have many patients.we can treat you in 3 years" :/
after 3 years i will have everything totally damaged
i can;t focus even on my work
so i just hope that after 10 weeks rebreaking is possible, perhaps then they will take me as urgent case
The most painful also is to be aware what TMJD is ... how it's irreversible problem when treated too late
it makes me so anxious :/
do not what to do
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Not a long term solution, but botox to the massater muscles may alleviate the discomfort.
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in my case it waon't help, because it's due to deviated jaw...
i do not tense up the muscles
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in my case it waon't help, because it's due to deviated jaw...
i do not tense up the muscles
Do you have a second opinion? The doctor should do a revision.
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please read me carefully. I'm going to hospital now
but for 90% i won't get any help.
the bone was mooved too much horizontally. now I know that. I regret I didn't choose another surgeon, who told me the bone should be moved mostly only forward :/
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If it's truly urgent you could take out a loan and visit a private clinic, you seem to know of plenty of surgeons at least.
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we will see. i still have hope that no correction will be necessary. If not then I will recommend him, especially after me he will be much more experienced :P
the problem i have moslty for one month
before it was just in some panics like states due to being in new situation - first surgery in life..not prepared that swelling is so tricky thing
oh Panthom ...no sunken eye ;) for sure
but the deviated jaw and TMJD is real issue now
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Who's the surgeon that did your operation?
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Can the muscle stretch? Is your bite affected? AFAIK, tmjs have some flexibility themselves.
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my jaw is deviated so the... joints kinda twisted... sprain
when you cross some critical point then flexibility can't help
my bite is affected (not so much), but it's the problem with the joints due to deviated jaw
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Then he should revision the surgery.
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then he doesn't give a f...
i asked about additional examination and he refused
because he told me i look ok "aesthetically" and he is not gonna change anything
he doesn't care i have functional problem
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then he doesn't give a f...
i asked about additional examination and he refused
because he told me i look ok "aesthetically" and he is not gonna change anything
he doesn't care i have functional problem
Who did your surgery?
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Haha should I tell the name for you? Its a joke rico after you had so much pain and agony in the last two months do recommend him.
Is this Rico a troll or something? The surgeon has messed up his joints and won't help him correct the issue, but he won't say who it is, so people on here can avoid them. But then he'll recommend the surgeon if his issue's resolves even though the surgeon won't do a revision if the surgery goes wrong.
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Yes I'm troll
if you were smarter you would know why i can't tell the name of that surgeon. He is not popular. Don't worry. for 99% noone will get to him.
Moreover I will get some examinations in next week, so I can't tell for 100% surgery is botched . I must wait.... no judge without examination
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bulls**ts and you have not read last informations. Update your data
0. Blink Reflex V2 showed that the nerve is in good condition , but compressed by a bone, no better examination to check if it's irreversible or reversible. Gamble
1. in first month, only infection post op
2. 100% hypoasthesia - 0% of feeling, after 3 months almost 50% of feeling,
3. deviated jaw , hence TMJ dysfuction
You'are writing about my first month - I was little in panic like state - first surgery, abroad, could not get help for 2 years.
After thar I've learnt how to be more cool. I did not know how swelling is tricky. It gave very strange looking eye and I was worried about that.
I was informed by other doctors, that orbital volume changing may give some complications. Fortunatelly it's OK
However now the problem is real. and I have documentation for that. Confirmation signed by dentist , doctor
so no, i don' think .all people on the world are panicking but only you know everything
The joints are twisted and that's no good for structures there. Irreversible damage begins slowly :(
your writing is pointless it gives me nothing, no help
4. overcorrection is confirmed
5. afraid of second nerve damage if correction necessary.
6. the bone is fused but mildly, hence i hope it cane be rebreak - it's less invasive then cutting
7. Surgeon refused to make other examination .to check why my jaw is deviated - the biggest problem ..no help
8. Surgeon seems to forget to check my occlusion before he closed me.
9. I was not informed about such possible complication
am I surgeon ? NO, but if I were a surgeon I would check the occlusion and find out that something is not OK before closing patient.
One Professor tells me I should be maxillo-facial surgeon, she thinks I would be the best, I told her that I will go to medical school when my nerve get 100% function ;) - almost impossible , so don't worry
I hope all information I could give here.
I did not write my surgeon was sued many times.... you are strange .. How would I know that ?
Probably he was sued like most surgeons, but that your opinion , not mine
Probably he was sued, since he does not like answer via mail, because it can be used against him in the case of surgical errors...simple
If he was 100% clear, he wouldn't have any problem with that...
People who has nothing to hide do not need to be very careful in that field
I see not point of such helpless writing
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bulls**ts and you have not read last informations. Update your data
0. Blink Reflex V2 showed that the nerve is in good condition , but compressed by a bone, no better examination to check if it's irreversible or reversible. Gamble
1. in first month, only infection post op
2. 100% hypoasthesia - 0% of feeling, after 3 months almost 50% of feeling,
3. deviated jaw , hence TMJD dysfuction
You'are writing about my first month - I was little in panic like state - first surgery, abroad, could not get help for 2 years.
After thar I've learnt how to be more cool. I did not know how swelling is tricky. It gave very strange looking eye and I was worried about that.
I was informed by other doctors, that orbital volume changing may give some complications. Fortunatelly it's OK
However now the problem is real. and I have documentation for that. Confirmation signed by dentist , doctor
so no, i don' think .all people on the world are panicking but only you know everything
The joints are twisted and that's no good for structures there. Irreversible damage begins slowly :(
your writing is pointless it gives me nothing, no help
4. overcorrection is minimal. in next week im gonna have examination to check if the overcorrection has some impact on my jaw deviation
initial diagnosis: YES it have , jaw deviation 2-3mm .cheek overcorrection 2-3mm , possible interference with coronoid process and muscles conflict ... aesthetically it looks OK, but for me more important are functions. Too early to say anything more. only that for 51% correction necessary
5. afraid of second nerve damage if correction necessary.
6. the bone is fused but mildly, hence i hope it cane be rebreak - it's less invasive then cutting
7. Surgeon refused to make other examination .to check why my jaw is deviated - the biggest problem ..no help
8. Surgeon seems to forget to check my occlusion before he closed me.
9. I was not informed about such possible complication
am I surgeon ? NO, but if I were a surgeon I would check the occlusion and find out that something is not OK before closing patient.
One Professor tells me I should be maxillo-facial surgeon, she thinks I would be the best, I told her that I will go to medical school when my nerve get 100% function ;) - almost impossible , so don't worry
I hope all information I could give here.
I did not write my surgeon was sued many times.... you are strange .. How would I know that ?
Probably he was sued like most surgeons, but that your opinion , not mine
Probably he was sued, since he does not like answer via mail, because it can be used against him in the case of surgical errors...simple
If he was 100% clear, he wouldn't have any problem with that...
People who has nothing to hide do not need to be very careful in that field
I see not point of such helpless writing
Still don't know why you can't name the surgeon? All your negative feeds on this forum puts new people off surgery that may really need it, and have come to this forum to seek help with decisions and advice on their specific issues.
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IT LOOKS LIKE..... NOT HE WAS SUED FOR 100%
I'm not idiot to judge without evidences
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Well I wish I could help but I can only offer my condolences for whatever it's worth.
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thx I wish myself local surgeons (NHS) could help me and it's not too late. I could contacted them earlier.
For 4 weeks I've been trying to get help from my surgeon, while the symptoms started be noticeable 6 weeks ago.
I had deviated jaw from the beginning, but for 2 months I though it's normal...since I had surgery on one side, and the mouth opening after surgery was significantly reduced. It looks like the surgeon completely did not look at my occlusion during surgery and he even skipped the issue (unknown for me from the beginning) during every check-ups.
He knew he screwed up something or completely lack of experience in this field.
and even if he unexpected this, then he should try to help me...to make at least additional examination. He refused all of things, and started typical talking about...that i'm too sensitive, I'm too focused on my symptoms.... perhaps something wrong with my brain. He was first time like this.
Probably that I showed him something is really wrong.
He says he sees such problem first time and he recommended me to wait next 4 months.
Then I asked him if this is the first time, so how he could know that it will be better in next 4 months and if he will repair my joints when they will be damaged due to this surgery. He answered he's not going to repair my joints in that case.
This is ridiculous.
How to not be focused on pain and on the fact that he f... up something - deviated jaw. for 60% he f... up something what needs more diagnostic
i do not trust him anymore
Moreover he did not informed me about such particular possible complication (the risk) I do not see this in my consent. I have to look at it once again
and I asked at this point about all documentation from the hospital..all , everything of course ..kindly and not him, but secretary ;)
and just in case i sent all my letters and requests by regular mail as it's more valuable in the law
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there are kinda soft tissue like pillow ..do not know how to describe. They are already crushed ? damaged ? irreversibly?
who knows something about that ?
or it will be better when the jaw will be in normal position
Are you referring to your discs?
What did they say specifically - that they're displaced?
And do they pop back into place, or are they displaced full-time?
Quite a lot of the population live healthy happy lives without proper working discs. Is it irreversible damage - mostly yes - but the body is amazing at adapting, and you might even form 'pseudo-discs' which is tissue behind the disc which hardens up and acts like a disc.
Or are your discs torn up? Have you had an MRI?
What sort of noises do you hear? It is a pop, click or crunch/grind/grate?
Both of my discs are already torn. I hear grating crunching noises. I haven't had any surgery yet though. I used to be in pain but I'm not in pain anymore.
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I'm still in examination phase...
I just got full scans a few days ago...
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Quote Rico: bulls**ts and you have not read last informations. Update your data
I just cited your own posts over the past weeks and months mate. Sorry if I couldn't keep up with all the new info you're putting up here every day.
You're a clown talking to me like that. You did write all the stuff I summarized from your own posts. Including almost being a surgeon ('The worst think is ...that i'm almost maxillo-facial surgeon ( there is reason why Professor wants me to go to medical school) and I see that for 70% i need correction.') And including talking 'prof to prof' to your surgeon. ( 'There is no surgeon without failure. Don't be fool. My surgeon made a lot of publications - above 100 and he didn't predict little thing. now I speak with him like Prof to Prof to resolve my problem. I spent many hours to draw some models to help me and him to resolve my problem') And including that you are teaching him.
8) 8) 8)
And you did write you thought your surgeon was sued many times:
Feb. 2nd for example you wrote:
'My surgeon gave me next consultation on 28.02.
i asked him 3 times about earlier new date and no response. I begged... nothing
it looks like he was sued many times. That's why he does not respond on mails. I do not know any reason to not write anything for a patient who is worried
I called secretary today. She told me he should answer me today, and nothing :/'
so this is the opinion of very well known surgeon
"I feel that much effort and skill is required. These bones a small and delicate and have been already cut and placed asymmetrical. That's makes everything very difficult. Hard to stabilize the bone and keep it in right place. All surgical cuts must be redone and it will be hard to keep in right place. Masseter prob is the easiest as it can be stripped off bone and reset correctly. I would need 3 surgeries to do repair and really don't know how well it will hold position.
Look for a very experienced
Surgeon. Thx sorry I can't help you solve this. "
It's for You- Ilovethemoon . that I really have problems. It's 2x time worse than I was complaining
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Rico your jaw and cheekbones look good to me.
(http://web-images.chacha.com/images/Gallery/1230/who-are-the-20-most-annoying-movie-characters-930253706-apr-1-2013-1-600x400.jpg)
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how you see this ? jaw is not in centred position
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how you see this ? jaw is not in centred position
That was a joke buddy. Didnt you see the picture I posted of Uncle "Rico"?
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i showed my photos to selected persons. They know what is wrong
moreover I published my scans here... overcorrection.. masseter muscle pull the jaw becaue zyg arch is set too wide
there is only one person who knows completely my story and he knows that everything is true
oh sorry 3 persons, but with one i'm in constant contact
I will show you mine photos if you show yours
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all i can say is please don't entertain these thoughts of death for a moment. you can get through this. you're just freaked out cause you think something has really gone bad. listen surgeons will always find problems so it depends on the surgeon. i'm sure others will find nothing wrong and have. surgeons are HUGELY fallible. I know this for sure. They're like medieval carpenters trying to build a shelf in the dark with a lot of sludge around it (i.e. flesh) --that's the state of the art. Even with x-rays they are all just guessing s**t all the time. Intuition and stuff plays a huge role in this science. It's kind of f**ked, but whatever, you are okay, you're living, you're able to eat, you're not in constant pain. People have had bullets lodged in their heads and lived out long and joyful lives. So I send you strength and healing vibes. I'm Buddhist so my mental energy is very high and I believe I can perform remote healing. I will hold you in my meditations and I will heal you. Worry no longer.
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You ask me about this ?
Then I will tell You what is Polish NHS
One year ago I sent some little amount of money to help a girl, who had cancer of the eye - just a few years old child
she lost one eye because of the cancer, and then later another one was in danger. So she could loose completel vision function
She had to undergo surgery within 2 months.
NHS refuse to give a money for surgery abroad ( in poland surgeons were not able to treat it)
This is the case when crowfunding helps... the problem is visible. In my case it's not visible it's just under the skin, only doctors can help me. They can send to treat this abroad if they can;t
as far they do not want me to help completelty
but the point of the story is how my insurance (only one) works
then compare my problem to that girl problem
and think about my chances to get help
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Yeah man this sounds really terrible. I'm so sorry man. It sounds like you're going through a ton of pain and problems. My only thought on this other than getting a surgery revision is that these things do adapt and settle. The body is an amazing healing machine and it is possible that your body will either adapt or surgery results will change such that the problem dissipates. "this too will change" it's the only thing we can bank on 100 percent.
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the biggest pain is I consulted 8 surgeons and I chose the worst
the problem was in the plan from the beginning
:/
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Rico, having suffered a zygo break, I do have all sorts of problems with sinus etc. I was told not to blow my nose for a month, which has been surprisingly not that bad and I do have weird feelings in my face, but they're all getting better. Could it be you're just not 100 percent healed yet?
Man, I feel bad for you cause it was really such a simple operation and you seem to have been majorly f**ked by it. But listen if it's the masseter muscle etc. that could remodel itself or change. The body has marvelous ways to heal itself so it is possible you'll just get better on your own. I wouldn't rush into any sort of surgery right now anyway.