jawsurgeryforums.com
General Category => Emotional Support => Topic started by: PloskoPlus on August 02, 2015, 08:32:00 PM
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This paraesthesia is driving me up the wall. I look in the mirror a couple of times a day. But I feel this crap every waking moment.
And now I'm compelled to have even more surgery to balance my face - the le fort advancement made my upper lip, my midface way too full, my chin weak. What a clusterf**k.
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wow you're going through some pain man. Don't let it get to you too much. It's really unfortunate about the lip sensation. Something like over ninety percent of people say it doesn't bother them but how in the world this happened to you. Really bad luck. But again dude you never know it may in fact improve.
Have hope. And you look great as is.
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It's the f**king upper lip. I've never heard anyone have trouble with their upper lip for so long. Earl had a god damn modified lefort iii, and his lip was numb for only a week. The upper lip is used for everything. What the hell was the point of all this, when talking, smiling is a chore. Ditto with my teeth. Solid bite... But I don't eat anything. It seems like I can't get ahead. All my wins come with losses elsewhere. Like a curse.
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man that sucks. you think you just have bad luck or maybe the surgeon made the cut too high? from what i remember you said you had a higher lefort, possibly this caused you to have these lingering issues?
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man that sucks. you think you just have bad luck or maybe the surgeon made the cut too high? from what i remember you said you had a higher lefort, possibly this caused you to have these lingering issues?
The plates are under the cheek bones, next to the Infraorbital nerve. I basically have the complications of le fort ii (any higher and it would have been one ) without any of the benefits - upper midface is still recessed. Lower midface is too full. The dreaded chimp look.
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we should make a list of people who regret/don't regret their surgery. I have a feeling the "regrets" are gonna win. And that is something people need to know. Like everyone needs to know this.
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Ditto with my teeth. Solid bite... But I don't eat anything.
What? Why?
Long shot, but is there any possibility pulling some of your plates/screws could relieve the problems you're experiencing with your upper lip? I suppose another surgery, cutting through the same tissue, could actually make the problem worse but I would still consider it.
Sorry, PP.
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That really sucks PP why did you get surgery to begin with, did you have a functional problem or was it all aesthetic?
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8 weeks out from surgery and reading this makes me scared as fuk. I hope you get your problems fixed man
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8 weeks out from surgery and reading this makes me scared as fuk. I hope you get your problems fixed man
Don't worry, you're young, your nerves will regenerate better than mine. This stuff is not painful at all, just annoying.
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That really sucks PP why did you get surgery to begin with, did you have a functional problem or was it all aesthetic?
I had no functional problems, except for underbite, deep bite, cross bite, some teeth showing wear from grinding.
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This stuff is not so bad. More like Chinese water torture. Drip, drip, drip, and then I snapped last week, because it's been going on for so long. I actually have feeling on my lip everywhere. It just feels stiff and rubberry on the right side. I keep rolling the right side of my lip over my teeth, which triggers this semi-burning stiff numb feeling. This stiff burning feeling resonates into my teeth a lot and even into the tip of my nose and roof of my mouth a bit. The roof of my mouth also has a funny feeling - like I burned it the day before... a bit dry. The stiffness seems to be abating.... slowly. It's just annoying me.
Perhaps because I had only single jaw surgery and the recovery was so easy, I just have this normality elsewhere which makes this really frustrating. If only surgeons set lower expectations - LF1 nerve problems are hardly ever mentioned.
Ferraro's max fac text book says it takes 12-18 months for things to return back to normal post-LF1. Incidentally, I suddenly started having electric sparks in the left corner of my lip again - and that's my good side!
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Ferraro's max fac text book says it takes 12-18 months for things to return back to normal post-LF1. Incidentally, I suddenly started having electric sparks in the left corner of my lip again - and that's my good side!
Sounds about right. I've had nerve damage from an unrelated surgery and it took me a really long time to get back to normal.
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This stuff is not so bad. More like Chinese water torture. Drip, drip, drip, and then I snapped last week, because it's been going on for so long. I actually have feeling on my lip everywhere. It just feels stiff and rubberry on the right side. I keep rolling the right side of my lip over my teeth, which triggers this semi-burning stiff numb feeling. This stiff burning feeling resonates into my teeth a lot and even into the tip of my nose and roof of my mouth a bit. The roof of my mouth also has a funny feeling - like I burned it the day before... a bit dry. The stiffness seems to be abating.... slowly. It's just annoying me.
Perhaps because I had only single jaw surgery and the recovery was so easy, I just have this normality elsewhere which makes this really frustrating. If only surgeons set lower expectations - LF1 nerve problems are hardly ever mentioned.
Ferraro's max fac text book says it takes 12-18 months for things to return back to normal post-LF1. Incidentally, I suddenly started having electric sparks in the left corner of my lip again - and that's my good side!
The electric sparks thing is a good sign! I got that feeling in areas before the feeling came back.
And, I agree - the amount of nerve issue and time of recovery (and feeling of depression) are NOT discussed enough. I think they think open and straightforward discussion would discourage people from the surgery and they assume that in time you will be glad you did it......but for that time after surgery until recovery - and for those whom it goes bad for.......well you just feel a bit mislead.....
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Most doctors would refuse chemo. I wonder how many surgeons would accept jaw surgery for themselves. Anyway, no matter how much you know, unless you've experienced X oneself, it's impossible to truly empathize with someone experiencing X.
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Very true Plosko.
That's why we have each other!
When I come to Australia, we'll have a beer together.
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This stuff is not so bad. More like Chinese water torture. Drip, drip, drip, and then I snapped last week, because it's been going on for so long. I actually have feeling on my lip everywhere. It just feels stiff and rubberry on the right side. I keep rolling the right side of my lip over my teeth, which triggers this semi-burning stiff numb feeling. This stiff burning feeling resonates into my teeth a lot and even into the tip of my nose and roof of my mouth a bit. The roof of my mouth also has a funny feeling - like I burned it the day before... a bit dry. The stiffness seems to be abating.... slowly. It's just annoying me.
Perhaps because I had only single jaw surgery and the recovery was so easy, I just have this normality elsewhere which makes this really frustrating. If only surgeons set lower expectations - LF1 nerve problems are hardly ever mentioned.
Ferraro's max fac text book says it takes 12-18 months for things to return back to normal post-LF1. Incidentally, I suddenly started having electric sparks in the left corner of my lip again - and that's my good side!
we're in the same boat ..having the same feelings as you .and i am post op 2 years , any improvement with the stiffness? inbox me
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yeah I'm going to have surgery in order to reduce parasthesia risking more damage. This is heavy
I know how it is. and I know about the chances ...extremely low
However I have parasthesia on the 1/3 of the face including upper lip. The lips are 1/3 of the problem in my case
but when a man cannot live with such symptoms then he tries to do something with this. 50% it will better 50% it will be worse
that is a gamble.
It's too early in medicine to undergo such surgeries for minor aesthetic problems. It isn't worth it. Perhaps in next 50 - 100 years
PS All of you who had surgeries. Did you ask your surgeon about statitics for nerve damage ? what experience has your surgeon ?
Mine told me it's a gamble. Some people has problem after surgery, some not. He do it in the samy way for all patients, but outcome is not the same
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I had Botox in my chin a month ago and maybe a week or 2 afterwards, my tingling in my lip has significantly diminished so much so that I don't notice it. It may be a coincidence but something has made a big change, and the Botox is the most likely cause.
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Hi PloskoPlus,
I am very new in here but I was wondering did you use vitamin B12 (Methycobal 500 mg) for helping nerve regenerating? Oral Surgeons in Asia prescribed it for every patient. But of course some got feeling back very soon and unfortunately some not. It is still depending on each person.
I just never heard anybody mention about this vitamin so I thought I would just try.
I just had double jaw surgery + genioplasty myself almost 3 months ago and very unhappy with the result. The surgeon moved my upper jaw forward too much so I am now looking like a chimp. Same problem as yours midface is way too full and it makes my face looks even bigger. Now considering another surgery to correct it but it is still scary. I just look in a mirror and saw somebody i don't recognize and that is really killing me.
Good luck and I hope you get better soon!
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A local surgeon told me 3 years for palate to regain sensation.
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A local surgeon told me 3 years for palate to regain sensation.
Palate was fine almost immediately.
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my surgery has gone succesful only in 50%...
completely numbness - i had hope to have minimal feeling after nerve decompression - stretching due to bone repositioning
my eye seems now to be a bit sunken - probably need correction in few months.
it sucks. If the eye was look 100% normal , i would be more satisfied having only hope for nerve regeneration
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my surgery has gone succesful only in 50%...
completely numbness - i had hoper to have minimal feeling after nerve decompression - stretching due to bone repositioning
my eye seems now to be a bit sunken - probably needed correction in few months.
it sucks. If the eye was look 100% normal , i would be more satisfied having only hope for nerve regeneration
Just wait till the paraesthesia kicks in. My hell seems permanent. How I regret this!
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I already had slight parasthesia - this is why I had nerve decompression
If you do not see other solutions and you are annoyed to the point of agony, you have last option
try this:
Etiofixine.
read this:
http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0120473http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0120473
buy here on your own risk. Try to find opinions if we can trust them.
http://rupharma.com/products/stresam
or if you have friend in France, try to get directly from there. It's available only in France.
Well known for its anxiolytic effect, but never tested on humans for nerve regeneration.
It was tested on rats. Effect is amazing
i think it's nothing bad to take it, cause the drug is used for reducing anxiety.
nothing too lose
the problem is where to find it....the pure drug ..good source
i'm gonna try it in next month.. but do not know where take it from
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I just had double jaw surgery + genioplasty myself almost 3 months ago and very unhappy with the result. The surgeon moved my upper jaw forward too much so I am now looking like a chimp. Same problem as yours midface is way too full and it makes my face looks even bigger. Now considering another surgery to correct it but it is still scary. I just look in a mirror and saw somebody i don't recognize and that is really killing me.
Good luck and I hope you get better soon!
Has it been getting better? You were only 3 months post-op at the time so it's very likely alot of the swelling could have been giving you a false perception. My upper lip is still pretty swollen even approaching 5 months.
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5 months post-op and you still have a swollen upper lip? Wow the recovery time for this surgery is crazy!
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it's good to make massages after 2 months post op. from time to time for a few months to reduce scarring issue
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Just discovering the "emotional support" side of the forum.. not sure if this forum just collects the few percent of people with damning complications from this surgery or if it really should be avoided unless your teeth are way out of wack, just due to the risk of so much else going wrong?
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Just discovering the "emotional support" side of the forum.. not sure if this forum just collects the few percent of people with damning complications from this surgery or if it really should be avoided unless your teeth are way out of wack, just due to the risk of so much else going wrong?
I was told my nerve damage is like 1 out of 50 or 100. Anyway, you need surgery. Don't take it the wrong way, but you will hardly look any worse after it. You probably need CCW. Ask how much posterior maxillary downdraft you need and how stable it is. What will happen if it relapses. Ask all the hard questions.