Author Topic: Dealing with family members concerns and prejudices?  (Read 1911 times)

Icy

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Dealing with family members concerns and prejudices?
« on: January 21, 2016, 02:02:36 PM »
Hi all, I know this is a subject that has been explored before on this forum but I was wondering if anyone might have some advice for me because I'm feeling pretty despondent right now. I had more x-rays taken at my appointment today (on a side note, I have no upper wisdom teeth but my bottom ones are HORRENDOUS) and I've been referred to a surgeon who is focused on maximizing jaw function whilst being very aesthetically focused, so I'm happy about that.

My appointment is scheduled for this coming Monday, but my father (I am still financially dependent on him and his medical aid) is not being supportive at all. My issues as stated on the letter of referral include TMJ dysfunction (pain, limited movement and clicking), short upper jaw, lower jaw deviated to the right, moderate facial asymmetry and overbite. These are all issues that impact my quality of life (I can hardly open my mouth and chewing is sometimes a complete nightmare for me) yet he told me today that if he thinks the long term benefits of the surgery don't outweigh the risks then he would not support me.

I can sort of understand his point of view, but at the same time I am somewhat horrified by the coldness of such a view. My right joint is deteriorating with every passing year and my facial appearance is so unbalanced and unattractive: he knows that my appearance upsets me a great deal and yet still felt comfortable saying something so bald and uncaring. I'm just feeling quite upset and despondent at this lack of support. I'm hoping against hope that the consult with the surgeon goes well and that I don't end up having to wait years or have s**tty compensatory orthodontics again.

Is there any strategy that has worked when trying to speak to family members about such an extreme surgery? It sounds too scary to a lot of people and I am quite a matter of fact person so maybe I haven't explained it to them in a way that makes it palatable? I'm not sure. Anyway advice would be appreciated greatly!

Optimistic

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Re: Dealing with family members concerns and prejudices?
« Reply #1 on: January 24, 2016, 04:20:50 PM »
Hi all, I know this is a subject that has been explored before on this forum but I was wondering if anyone might have some advice for me because I'm feeling pretty despondent right now. I had more x-rays taken at my appointment today (on a side note, I have no upper wisdom teeth but my bottom ones are HORRENDOUS) and I've been referred to a surgeon who is focused on maximizing jaw function whilst being very aesthetically focused, so I'm happy about that.

My appointment is scheduled for this coming Monday, but my father (I am still financially dependent on him and his medical aid) is not being supportive at all. My issues as stated on the letter of referral include TMJ dysfunction (pain, limited movement and clicking), short upper jaw, lower jaw deviated to the right, moderate facial asymmetry and overbite. These are all issues that impact my quality of life (I can hardly open my mouth and chewing is sometimes a complete nightmare for me) yet he told me today that if he thinks the long term benefits of the surgery don't outweigh the risks then he would not support me.

I can sort of understand his point of view, but at the same time I am somewhat horrified by the coldness of such a view. My right joint is deteriorating with every passing year and my facial appearance is so unbalanced and unattractive: he knows that my appearance upsets me a great deal and yet still felt comfortable saying something so bald and uncaring. I'm just feeling quite upset and despondent at this lack of support. I'm hoping against hope that the consult with the surgeon goes well and that I don't end up having to wait years or have s**tty compensatory orthodontics again.

Is there any strategy that has worked when trying to speak to family members about such an extreme surgery? It sounds too scary to a lot of people and I am quite a matter of fact person so maybe I haven't explained it to them in a way that makes it palatable? I'm not sure. Anyway advice would be appreciated greatly!


Sounds clear to me.

1) Demonstrate in detail the dangers of not acting on this:
- TMJ deterioration
- Living in constant pain
- Sleep apnoea which will affect health, fatigue, ability to study and work, brain fog. will get worse with time
- Requirement to be forced into surgery later after the joint gets f**ked
- Open up airways

(these are the main ones to focus on. You want to speak mostly to the dangers of not doing the surgery, and on the health risks in a big way. Prove to him this isn't cosmetic, it's an operation for your health)

Next you can discuss about how it isn't a cosmetic operation in the sense of improving looks to beyond nature, it's about bringing you back to where you should be. About making you NORMAL. And doing that will have health benefits, but will also make you look better because right now you're deviated outside of the norm. You could use analogies of how someone might want a jaw implant for a better jawline, but such a person can't see the surgeon you want to. Your surgeon can only operate on someone if there is a deficiency or a deformity somewhere that can be corrected. Correction is key.

2) The dangers are very, very slim. Nerve damage is about it, or unsatisfactory result.

Explain to him what the realistic dangers are, emphasise how this is your body and you want to take those risks because right now it's difficult to live the way you are, and all you're asking for is his support. Even if HE doesn't want to, he should at least recognise that it's important to you to get something done such that you will accept risks. Plus, all operations have a risk. There is no operation that won't - so he needs to be aware that you can't be so risk averse with this stuff.

A lot of people get scared off by the idea of "CUTTING / BREAKING BONE!!!!11" which is pretty brutal, but at the end of the day people fall and break their arm every day, and it's basically the same s**t except you'll be totall unconscious for the operation itself, and it'll be done in a room of medical professionals with a stated goal of massively improving your health.



I had a lot of hte same issues as you in terms of convicning family I needed something done, now in hindsight they see it, but it's something you'll probably have to fight for. I remember I would regularly bring it up, talk a lot about the operation etc. The more I spoke about it the less "scary" it became because suddenly almost every day they were hearing about the surgery. I also pointed out how important it was to me to have it sorted out when I was still young, as I wanted to live my life happily without deformities. Not lose my youth then finally get it fixed at 35 when nobody cares.
01/10/14 - Last night I spilt spaghetti sauce on my chin for the very first time in my life and cried.

Icy

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Re: Dealing with family members concerns and prejudices?
« Reply #2 on: January 25, 2016, 01:23:30 AM »
@Optimistic, thank you for your suggestions! I have been trying to get through to him and these will help a lot. I've moved my appointment with the surgeon to tomorrow morning so that my father can come with me and hear these things from the horse's mouth (I only hope that the surgeon will not be as condescending and impatient as the one I saw prior to re-commencing orthodontic treatment).

And to Tumerican, I'm not sure that that's the issue here. My dad is a very mathematical and intellectual man, I think he has a tendency to approach issues that he can't empathise with in a detached and statistical manner, but  I wasn't expecting him to behave this way because I have also had a rhino in the past and he understood how much that would help me function  (both physically and emotionally) and supported me then. I think he had the tendency to be blind to the truth and regards me as his beautiful daughter who has nothing wrong with her. He also comes from a family with no history of any dental issues  (he and my aunt have perfect straight teeth and are both very attractive , my grandmothers and grandfathers on both sides were both very attractive without malocclusion and my sister is stunningly beautiful though she does have bad TMD- she looks just like my mother). Genetically  speaking I shouldn't look like this, so if there is a genetic component god knows where it came from. I'm inclined to think it was the perfect storm of thumbsucking and mouth breathing that got me into this horrible mess. :/ I haven't resembled either of my parents in my life, maybe I'm adopted! xD

Icy

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Re: Dealing with family members concerns and prejudices?
« Reply #3 on: January 25, 2016, 03:26:04 PM »
@Icy

Yeah I get you. I really don't understand what happened to me either. Perhaps its just me being hopeful but I really don't think I was supposed to look like I do now, no way of really knowing though I suppose - apart taking an educated guess from childhood pictures and seeing how other family members look.

I really hope you get everything sorted and are happy with the results.

I totally understand that feeling, I am quite certain I wasn't meant to look and feel like this so the thought of at least mitigating some of the damage to my looks, jaws and teeth is a bit of hope that I don't want to have to lose. I'll post an update after my appointment tomorrow, hopefully I am able to get 1. my father's support, and 2. support from the medical aid (insurance). This started off as a cosmetic endeavour, but considering the damage that's already present in my teeth and joints I am more concerned with fixing that at the moment (maybe even improving my breathing too). I've encountered a weird sense of peace with my appearance lately - I still hate how I look, but I think that shifting focus to the health aspects has helped keep my emotions in check. I hope your healing continues to go well and that everything goes well for you too!

molestrip

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Re: Dealing with family members concerns and prejudices?
« Reply #4 on: January 26, 2016, 09:51:57 PM »
I had severe sleep apnea that went untreated for a decade at least and I can tell you, you do not want to be me. I went through utter hell to find my way here. I haven't pulled together all the details but in many ways, sleep apnea is worse than many other chronic illnesses. It kills you faster and makes life more miserable. It doesn't get respect because the long term impacts aren't widely known so when complications occur, fingers are rarely pointed to it. The medical community will hit an inflection point eventually where doctors start realizing that we're not making stuff up here but until then we have to settle for passing around books like Sleep, Interrupted by Dr Park.

I don't think the risks mentioned is a fair assessment. There are significant risks to the surgery but it's largely a solved problem today. Bones and mucosa, as it turns out, heal relatively well. It doesn't matter what the risks are because you didn't get a no-risk hand in life. You only get to pick which risks to take and when. For me, the risks of not doing surgery outweigh the surgical risks. I would say that the biggest risk factor is surgeon choice. I see surgeons doing the wrong procedures all the time, on here and elsewhere. I see upset patients who didn't understand aesthetic compromises they had to make and surgeons making aesthetic decisions over health. Post your location here and we can help you find a suitable surgeon. Then do what they recommend.

Icy

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Re: Dealing with family members concerns and prejudices?
« Reply #5 on: January 27, 2016, 02:54:14 PM »
So, a quick update post-consultation. I really liked the surgeon, he was matter of fact, kind and reassuring. My dad listened to what he had to say and that was a big relief, his practice is also covered by my medical aid (insurance) so that's another plus. What I learned at the consultation was a bit worrying though! I have what appears to be a dislocated disc in my right TMJ and an overgrowth of bony prominence which is exacerbating the TMJ pain and mobility issues. I have a MRI scheduled tomorrow to confirm this diagnosis, which if proved correct, will require a surgery to remove the bony overgrowth of the joint and repair or replace the displaced disc as well as remove my wisdom teeth. (I am 23, how can my joints be in such bad shape?!)

The surgeon said that this joint dysfunction is causing my mouth to deviate to the right and is definitely part of the asymmetry issue (my midlines are quite noticeably off). I was a bit concerned that the focus on the joint was waylaying the primary issue of why I came to see him, but he explained that we would have to sort out the joint before considering any surgical movements as the instability is a serious issue. I reiterated to him that I disliked my appearance and that I didn't want to have camouflage orthodontics again as they left me with an unattractive appearance and smile and he was completely understanding, so unlike the last surgeon I saw! He made sure to emphasise to my dad that with a corrective jaw procedure it is primarily a functional operation with a cosmetic benefit, ie that form follows function and that it would be putting me where I should be which was really really good to hear.

He performs 300-400 corrective jaw surgeries a year, I'm not sure if that's a particularly huge number but it helped allay my fears somewhat, and he also only uses specialist anesthetists which was also reassuring. I shall post an update when I have more news regarding the TMJ surgery!

@molestrip, I have already had issues with breathing and swallowing for a while now, so I'm hoping against hope right now that the TMJ can be fixed quickly and that surgery could be performed as soon as possible while I'm still young. The surgeon I saw was very plain when it came to the risks involved with surgery, but he also deals primarily with young patients (20s-30s) and stated that I had a very good chance to heal well without any problems. I am South African, so I had considered Dr Reyneke but my orthodontist doesn't work with him and he is quite honestly beyond my financial means at this point in my life. The surgeon recommended to me has impressed me so far and my orthodontist stated that he is specifically very focused on balancing great aesthetics with the highest functional outcome, and that she has worked with him on many cases. She has been wonderful so far, so I trust her recommendation. We'll see how it goes!