Great thread. I just wanted to add my own personal experience of midface hypoplasia.
I had Leukaemia when I was age 5, and was treated with cranial radiation. I started to notice a change in my face during puberty but only 20 years later I was able to get a rough diagnosis of midface hypoplasia from a plastic surgeon. After finding out about my condition I then went to go see a Maxilofacial surgeon and was given the diagnosis, plus he believed it was a direct result of the radiotherapy.
I am based in the UK so have been trying with great effort to get my condition treated on the NHS. Here it seems like the facial surgeons are living in the stone age. I have spent two years going to appointments with general plastic surgeons, as well as a jaw surgeon and orthodontist. They started out giving the belief that they would fix it, only to change their minds last minute.
Currently I have seen another surgeon that wants to fix my midface hypoplasia with a Lefort I, so having braces applied first to pull back the angle of my front teeth as well as make room. From all my research I know that only addresses half of the issue so I mentioned about the option of cheek implants and the surgeons reaction is "That's something we could think about".
My experience of maxilofacial surgeons has now become quite poor. So now having to see a third surgeon, whom I've already seen privately. He is the first maxilofacial surgeon I have seen that just sat me down, looked at the structure of my face and saw the issues and told me he would be happy to see me on the NHS and treat me.
So fingers crossed I will now be able to get my condition fixed. Will update the post later.
_Ck