Have you not seen the message of my friend Lazlo? Anthony Wolfe is the answer. Contact him and do not forget to let us know what he is saying.
re: Encouraging the pursuit of a risky procedure on a NON SYNDROME patient.
...and this goes to Lazlo too....
Then let Wolfe DISCLOSE he does such surgeries for non syndromatic patients. Do you have any information as to a non syndrome patient such as the OP having this surgery by Wolfe where Wolfe would admit/disclose he does so and would do so for such a patient?
IMO, a doctor who would do so for a non syndrome patient would do so on the condition would NOT disclose he/she had such a surgery and certainly be unlikely to disclose such on a public forum and for reasons, it could be considered unethical.
Unless you can find a NON syndrome member on here who would be willing to disclose they had this done (and post photos), who would NOT be PRECLUDED by Wolfe for such a disclosure, please refrain from further encouraging the pursuit of this procedure.
Have either you or Lazlo had this surgery by Wolfe or is this more of matter of sending someone ELSE off as a
guinea pig to do it for the purpose of 'finding out' if it works out?